Research on therapy of RLS

EUROPEAN RLS PATIENT REGISTRY

A new European research initiative.

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Request patient user account

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How to participate

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Data entry is easy, secure and completely anonymous.

We need you

Research on RLS needs data.

Looks like an app

No installation required.

No data from device

No device-internal data will be transfered. No GPS, no device-internal health data, no messages, no mobile acivities.

Anonymous

You do not enter any personal identifying data. You will have your own unique pseudonym and password to login. Not even your private e-mail address ist required.

We care about your privacy. We even provide an option for you to use an anonymous e-mail-alias. The steps to set this up on your side are very easy. Read more…

Device-independent

Use your smartphone, tablet, notebook or desktop computer to enter your data.

Easy to use

Data entry is as easy as filling out an online form in your webbrowser. And it is secure too: data transmission is encrypted, no public cloud servers are involved.

Built with brains

Get More Insights from Your Real-Time Data

We will constantly update our dashboard on this website to show you the progress of data within the registry.

Monitoring

Internal rules during data entry are the first level of making sure that the data quality remains high. There will be quality controls on the data entered on a regular basis to even increase the data quality.

Funding

The registry is not funded by commercial companies. Thus we are dependend on private funding to make sure our efforts are sustainable.

Information

Right now we are expanding this website to provide all informations necessary about the requirements, recruitment, how to use the registry for data entry and most importantly about news around the registry.

Get involved

Fast Start-up without Hassle

Get your login data and enter our data – right now, in 6 months, in 12 months and yearly from then on.

With help from

Our partners

Without support from these organisations, the registry would not be possible.
European Alliance for Restless Legs Syndrome (EARLS), European Brain Council (EBC), European RLS Study Group (EURLSSG), Deutsche Restless Legs Vereinigung (RLS e.V.), Stichting Restless Legs Netherlands, Association France Ekbom (AFE), Finnish Association for Sleep Disorders, RLS-Förbundet Sweden

EFNA

one neurology

The driving forces

Meet our initiators

Combined European efforts for a long-term digital project to support medical research.

Joke Jaarsma

Netherlands

Search.

“The search into the cause(s) of RLS and for new treatment strategies has to be intensified in order to reduce the suffering of people with RLS and the high societal cost.”

Prof. Dr. Yves Dauvilliers

Montpellier, France

Longitudinal assessment.

“The EU RLS registry for patients is almost ready to start with objectives to perform a longitudinal assessment on a 6 month and then yearly basis.”

Prof. Dr. Dr. h.c. Wolfgang Oertel

Marburg, Germany

Real life data.

“A patient-driven registry and patient driven clinical data base offers nearly continuous and repeated generation of real life data.”

Ready to join?

You are a patient with Restless Legs Syndrome? Contact us to find out haw to participate with your data! You are a physician with RLS patients? Spread the word! You are a RLS patient organisation? Ask your members, if they want to be included in a European RLS research project! You are a medical research group for RLS? Get in touch with us to find out about our IT-plattform!

EUROPEAN RLS PATIENT REGISTRY

Help us grow